OK I lied

Tuesday, November 23, 2004

I thought they had left. As usual they tricked me. 3 attacks. What a f*%king pain! Literally. After 3 years they still surprise me. Think by now I would know them a wee bit better. Ended up having a couple of naps just to recover. Now I am going to be up half night, making up for lost time. Worst part is since clusters are linked to the brains' internal clock. Having a schedule for sleep, eating & so on is very important. Mine has been completely thrown off the past month or so. Take a bit to re-adjust back to everything.

My seizures seem to have increased as well. Maybe it is time to change seizure meds. One is most likely affecting the other. I seem to remember when it was really bad my left arm & leg were always twitching. According to someone on an epilepsy news group, I have 'night seizure'. I am still looking to find out exactly what the technical name is & how to deal with them. The idea of my tongue blocking my airway while I sleep wouldn't be how I'd like to go out. There must be some ways others have shared to deal with this. Plus I have the best supporter in the world, my girlfriend, Mindy :) Love you sweetie xoxoxoxoxo


Medical terminology can cause confusion at the best of times. If there is a word you do not understand all you have to do is double-click on it and the definition will appear! Don't forget to drop me a line by email at versilleus@gmail.com with your comments, questions‚ recommended resources‚ concerns‚ & especially your experiences with clusters. Or come find me on my Facebook Profile to add me as a Friend. Whether you are a supporter‚ care-giver or sufferer. I would love to hear from you!

*Please do not use this information for self diagnoses. Writing about my experiences with chronic cluster headaches & epilepsy is a good outlet for me. Consult your Dr. with any kind of headache or chronic pain you may have. The 3rd party links on my site I have found to be a good resource to me over the past few years & dearly hope they will benefit you as well.*

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