Friday, November 26, 2004

I missed another dr. appointment due to seizures. My dilantin level must be off again. But bitch, bitch bitch. That's all I do. So since I can't think of a bloody thing to write... I went through some of my old journals & thought it would be weird if I posted what I used to feel like before being diagnosed & properly treated. Of course it is unedited. Just to show the differences.

I'm not so of the exact date. Probably about 2 and half years ago.

"Great, more pills to find the 'right combination'. How long will that take I wonder? Or wil there ever be a combination that works. According to most people & dr.'s I shouldn't be feeling like this but that doesn't change the pain I'm in. I constantly hear how people know someone whow suffers from migraines and how they couldn't believe the pain they or someone they saw were in. I have to go through that most days. Now I think people believe I'm usinf it as an excuse. I'm not. I want the pain to go away or at the very least manageable so it doesn't control my life."

I am amazed could write anything back then. Pain was undescribeableSure didn't have much to say. Mostly begging and pleading. I'm still doing that now.


Medical terminology can cause confusion at the best of times. If there is a word you do not understand all you have to do is double-click on it and the definition will appear! Don't forget to drop me a line by email at versilleus@gmail.com with your comments, questions‚ recommended resources‚ concerns‚ & especially your experiences with clusters. Or come find me on my Facebook Profile to add me as a Friend. Whether you are a supporter‚ care-giver or sufferer. I would love to hear from you!

*Please do not use this information for self diagnoses. Writing about my experiences with chronic cluster headaches & epilepsy is a good outlet for me. Consult your Dr. with any kind of headache or chronic pain you may have. The 3rd party links on my site I have found to be a good resource to me over the past few years & dearly hope they will benefit you as well.*

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