It Sure Has Been Awhile
Monday, February 07, 2011
After little more than a 9 month break I have decided to start posting again. Not sure as to what kind of frequency yet. Much like a Cluster Headache cycle, it will be taken one day at a time. The reason I stopped was to try to free myself to do something other than talk about Clusters. When time is extremely limited and a wide variety of possibilities to trigger or make a current cycle worse, time needed to be freed up somehow. Maybe not talking about them so much would help. For the record, it hasn't.
As horrible as this sounds, the only real place I have to vent my frustrations, experiences and outright complaints is this blog. Sounds kind of pitiful does it not? But unless someone has had some direct experience with Clusters or another type of long term, intense pain they will have a hard time understanding. How could they? Some still get mad when I can't do something even though "I look fine". It doesn't help that people have a tendency to put lazy/not wanting to work and unable/can't work in the same category. The poor and disabled have always been easy targets and I am sick of bottling it up.
Over the next while I hope get back to writing. Maybe even with some regularity.
Paul
Action and reaction, ebb and flow, trial and error, change - this is the rhythm of living. Out of our over-confidence, fear; out of our fear, clearer vision, fresh hope. And out of hope, progress.
-Bruce Barton
1 comments
As horrible as this sounds, the only real place I have to vent my frustrations, experiences and outright complaints is this blog. Sounds kind of pitiful does it not? But unless someone has had some direct experience with Clusters or another type of long term, intense pain they will have a hard time understanding. How could they? Some still get mad when I can't do something even though "I look fine". It doesn't help that people have a tendency to put lazy/not wanting to work and unable/can't work in the same category. The poor and disabled have always been easy targets and I am sick of bottling it up.
Over the next while I hope get back to writing. Maybe even with some regularity.
Paul
Action and reaction, ebb and flow, trial and error, change - this is the rhythm of living. Out of our over-confidence, fear; out of our fear, clearer vision, fresh hope. And out of hope, progress.
-Bruce Barton
1 comments
1 Comments:
i'm having a bad CH attack right now, and instead of the usuall dance I decided to post something here, sorry I don't have anything smart to say, you know the feeling, I'm just tired of feeling lonely in this (more lonely each attack) since everybody is tired of my "headache"
By 
, at
23 August 2011 at 22:03
Medical terminology can cause confusion at the best of times. If there is a word you do not understand all you have to do is double-click on it and the definition will appear! Don't forget to drop me a line by email at versilleus@gmail.com with your comments, questions‚ recommended resources‚ concerns‚ & especially your experiences with clusters. Or come find me on my Facebook Profile to add me as a Friend. Whether you are a supporter‚ care-giver or sufferer. I would love to hear from you!
*Please do not use this information for self diagnoses. Writing about my experiences with chronic cluster headaches & epilepsy is a good outlet for me. Consult your Dr. with any kind of headache or chronic pain you may have. The 3rd party links on my site I have found to be a good resource to me over the past few years & dearly hope they will benefit you as well.*
